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Brandie Garrett D'Orazio 
Member since Apr 20, 2019


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Re: “Fear Not: A Mother Reflects on Parenting in the Shadow of a Fatal Disease

You are so damn on point. Our son too was born w a terminal genetic disorder. We removed care at 18 days. 2 plus years later he is still here. We have no idea how long he will live, other than he seems to have beaten the odds. We live life like you. Full of challenges, but with a renewed sense of purpose, strength, and appreciation for life. Thank you for sharing. You have captured this so eloquently. We wish you continued love, strength, and joy. May your community ad family continue to multiple your joy and divide your sorrow.

7 likes, 1 dislike
Posted by Brandie Garrett D'Orazio on 04/20/2019 at 8:47 AM
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